Saturday, August 3, 2013

I have not posted in a while, just too tired I suppose, too much running around. Doctor appointments. But I feel like crap. I am not working now. Last Sunday I could barely get out of bed, could hardly walk, I know I called the supervisor and just said I can't come in, I just can't or something like that. Everything hurt.  Later that day I was admitted to Abington Hosptial.  I did work the day before, a 8 hour shift, which should have been no sweat after working 12 hours shifts, but it killed me, I came home, tried to eat, but vomited instead. I was going to call out then, but did not.  Just thought go to bed rest, you will be better.
But I wasnt.

 He should have just put a gun to my head and pulled the trigger. This is no way to live.

I want people to know my story.

I was stuck on 4/4 , my hep panel was negative as well as my hiv status
Pt was hep c + Hiv-
A titer was also drawn for my hep b status
1.8% chance of converting per cdc
appt was set for  4/19

I got a call on 4/9  that my hep b titer was low and I needed to be re-vaccinated, okay that could make sense, I was vaccinated in the early 90's. I needed to come in and start a new series

I asked about my appt on the 19th  and was told to disregard just come in on May 17 for a repeat blood draw HCV RNA PCR  it looks for the hep c virus in your blood stream.

Between the stick and May 17 I did get sick, but nothing I could put my finger on, I edgy, cranky, moody, itchy, nauseated, headaches beyond belief, muscle aches, joint pain. It was all I could do to work, and then pull myself literally up the 15 steps into my house, I would drop my bags, get to the sofa and sleep on the sofa, more like collaspe on the sofa. This went on for weeks, and the itching was intense. No housework was done, no gardening. Only laundry I did were uniforms and underwear.  I thought my sofa was infested with bugs, I finally decided that was why I was scratching and itching so much, not knowing it was the virus. I brought new furniture...visa bill is due next month...I am out of work now.


Headaches ...started getting worse, but then I started smelling lilacs before onset of one sided sudden sharp headaches, intense pain, I remember 3 episodes like that. That scared me enough, to find a new family doctor, problem was he could not see me until June.  But I knew my friend Randy , Dr. Rosenberg could see me and he did very quickly. He ordered a lot labs and a MRI/MRA.  On 5/17 I had the HCV RNA PCR drawn at work health, on 5/18 I had outpatient labs and the MRI/MRA done.
 
 I was started on Topramax, had to be some kind of migraine, after all you can get nauseated with migraines, and the Er has expanded, no wonder I was so achy and tired...excuse for everything.
 
I had a week off near the end of May, and went up the mountains to see my Dad, for his birthday. 
It was a long drive, and usually I like driving up there, it was exhausting.  And unusual for me, when we went anywhere I asked my dad to drive, said I wanted to sight see.  So I relaxed I came home and went back to work.

I need to rest , really tired now....more later



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